Mornin' y'all!
We came in this morning to see the most wonderful sight: Zach had his eyes open and was wiggling around! They took out his oxygen, unhooked his IV (though the heparin lock is still there) and have increased his feeds all the way up to 25cc/hr :D
Dr. K2 wants to switch him over from continuous feeds to bolus feeds, which just means that instead of having a continuous drip into his belly, they'll do one big feed then not feed for a couple hours, then do another big feed, just as he would get if he were nursing. If he tolerates the first one (or maybe two, not quite sure yet) well, then he wants me to actually nurse him every other feeding!
And now for the possibly slightly upsetting news. Now, they don't know anything yet, so Dr. K2 told us not to get all excited about it (yeah right lol). His blood work this morning came back with his ammonia level being high. He said that his ammonia level could be high due to a procedural error (he said the test itself can be kind of tricky), so he came in and repeated the lab himself, and we're waiting on it to come back. On top of that, his urine from last night had what's called "reducing agents" in it. Basically, he's spilling sugar into his urine, but rather than it being glucose like adults have, it's milk sugar. That means that there is a possibility that he's having trouble digesting the milk :( Now, he did say that he's gotten a lot of false positives on that test lately, so he's repeating it tomorrow. IF it comes back positive tomorrow, he wants to switch Zach to a soy based formula until he can get back a metabolic panel (?) on him, which "could take a while". If that happens, he still wants me to pump every 3 hours like I've been doing to maintain my supply just in case it's not a metabolic disorder, so that I can switch him back to milk at that time. Now, like I said, that's not certain, and it's only if the test comes back positive tomorrow, so there's really no way to know as yet.
I just want to say that would suck. Those who know me know just how much that would suck. That's all I'm going to say about that.
But, he's over here meowing at me so I'm going to go hang out with my fella :)
I'll update later :)
Saturday, April 12, 2008
Subscribe to:
Post Comments (Atom)
4 comments:
Wow, everything sounds like it's going GREAT! Hopefully it's not a metabolic thing so you can still nurse. I know you and I KNOW how important that is to you. But if it is, honestly, you have to do what is best for Zach and soy formula will be what is best for him in that case, I know you know that, and he will grow up into a healthy little boy just like James, so try try not to stress about it too much if it does come back that he has a problem with the milk. I would try to not even think about it until you know. We are going out for the day so you will get a break from my stalking ;)
what great news to hear he is doing so well. we all know how important breastfeeding is to you so hopefully it was just a fluke in the test and it's not a metabolic disorder. sounds like Zack is a trooper and will be home soon....
im bawling reading this jess. it brings back so many emotions for me and my heart hurts that you have to now know the pain of the nicu/picu.
keep your head up, we are all praying for you guys!
steffanie
What great news! I hope that it is just "flukes" with the test!!!
Still praying for ya!!
Nancy
Post a Comment